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Pitfalls of a Pediatric Patient Diagnosed with Celiac Disease

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Good day to you.  I recently had the privilege to guest blog on Claire Baker’s blog:  So what CAN you eat?. Claire Baker is a wonderful advocate of celiac and glutenfree and I hope you check out her blog.  Please read more about Claire Baker via her biography:  About Claire Baker.  Via Twitter, here’s how you can reach Claire Baker.

Claire asked me to guest blog on the subject of a non-compliant, diagnosed celiac kid.  Little did she know, that non-compliant diagnosed celiac kid was me.

Here’s the opening of my guest blog on Claire Baker’s blog:

May is Celiac Awareness Month.  For my part, I’m GIVING AWAY electronic copies of my new cookbooklet, So What CAN You Eat? Gluten-Free Paleo Vegan (mostly) Recipes for Health and Weight Loss.  (It’ll be for sale at the Amazon Kindle Store later today.)  It has 19 fast, easy, nutritious, gluten-free recipes plus tips and strategies to support healthy living.To receive a copy, sign up for my mailing list at the home page of the website and you’ll receive an email with the link for the download. In addition, I will be doing a guest “blog” later in the month at http://iamjtheblog.wordpress.com/.  More details to follow.

Also in honor of Celiac Awareness Month, I invited GFDougie to write my first ever guest blog post. Dougie and I met via Twitter. His celiac history is very different from mine and his story of being a non-compliant celiac kid gives me empathy for my own kids who are growing up with their own special variety of “different.”

Good day to you. I’m going to take you on a personal journey of the how and why a kid blatantly cheats with gluten while having been diagnosed with celiac disease. I hope this personal journey will help you understand what you can do to help support and educate a celiac kid live gluten-free; and likewise, a celiac kid to gain the mental tools of fortitude and strength to obtain the courage to lead a gluten-free lifestyle.


Please read more of my guest blog on Claire Baker’s blog site here: http://www.clairebakerok.com/1/post/2012/04/pitfalls-of-a-pediatric-patient-diagnosed-with-celiac-disease.html
Research, educate, and advocate all celiac and gluten-free – and Celiac Disease Awareness for May.

Peace be with you.

No spousal support for celiac? Find another spouse.

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“No spousal support for celiac? Find another spouse.”  Via Gluten Dude’s (https://twitter.com/#!/GlutenDude) blog:  http://glutendude.com/

Link to Gluten Dude’s blog below:  http://glutendude.com/gluten/celiac-disease-support/

Thank you, Gluten Dude, for your permission to re-blog this post as I find this a subject most people have not yet put a spotlight on.  A support system, inclusive of your spouse or significant other, should be important to you, celiac, as this “is your Life.”

Research, educate, and advocate all celiac and gluten-free – with your partner’s support.

Peace be with you and please read on …

November 15, 2011

In honor of today being Mrs. Gluten Dude’s birthday, I thought I’d write about the importance of spousal support for those with celiac disease.

I belong to several celiac forums and help people out where I can. I cannot tell you the number of people who do not get support from their spouses when they get diagnosed with celiac disease. It is so sad. Here are some of the complaints I hear:

“My husband says I can have a little gluten…it’s no big deal.”

“My husband constantly contaminates my gluten-free butter.”

“My husband says celiac is a media created disease.”

So two questions:
1) Why does it always seem to be the husband who lacks the compassion? Actually, don’t answer that…or if you do, be gentle.
2) What the #$%$%# are these people thinking??

Do the words “in sickness and in health” ring a bell??

When you first get the dreaded celiac diagnosis, it is absolutely overwhelming. You feel like your entire life has been overturned. And in a way, it has. Nothing will be like it once was. I still remember going grocery shopping the day after my diagnosis and all I kept thinking as I was going up and down the aisles was “I can’t have that. I can’t have that. I can’t have that. I can’t have that.” It really sux.

But if I had to do it without Mrs. Dude’s support? I cannot even imagine. Immediately, she immersed herself in education about the disease. She went out and bought separate utensils and pots and pans. She made part of the kitchen off limits to everyone but me. She labeled all of the drawers, counters, etc. “gluten free” to remind the kids and our guests. But more than anything else, she just made me feel like I was not in this alone. And because of this, it’s five years later, I’m (somewhat) healthy, I’ve never cheated and living gluten free just feels “normal” now.

But this post is not about me. It’s about YOU.

You need this type of support. If your spouse is not behind you 100%, dig deep and figure out why. It is a tough journey having celiac disease and it’s one nobody should go through alone. But to go through it while somebody in your own home is fighting it? Total BS. No, I’m not really advocating leaving your spouse. Suggesting? Maybe. But advocating…no.

But if your spouse is indeed in denial, you need to find another support system. The celiac community is indeed a wonderful group of people. Immerse yourself with them and all of the sudden, you won’t feel so alone.

Join Twitter and hashtag gluten and celiac.

Register with celiac.com and engage yourself in their forums.

Find a celiac support group in your area.

And by all means, feel free to ping me whenever you want.

I may not be your spouse, but I’m not half bad.

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Earth Day – 22 April 2012

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Good day to you.  Today is Earth Day – 22 April, 2012.  Do you know why this day is celebrated?  Here’s one version of the history of how ‘this day’ came to be:  http://www.earthday.org/earth-day-history-movement.  Here’s another version:  http://url.ie/f6h0.

Now we are in the 21st century.  We have recycle bins and shredders for paper.  We use energy-efficient lighting.  That said, are we really recycling enough to save our planet, the Earth?  I think not and here’s one reason why:  Massive food companies are allowing the marketing of single-serving plastic containers which are then thrown into our landfills after a single use.  How much plastic is thrown into our landfills?  Here’s one marker for you:  36 Billion single-serve water bottles end up in our landfills each year (source unknown).  In my personal opinion I’ve seen a continued increase in the past ten years of single-serving food items like gelatin desserts, frozen microwave meals, fruit snacks, and the like.   Single-serve packaging continues to clog our landfills without check or legislation. 

Here’s another Earth Day shock point for you:  http://url.ie/f6jh.  Glass does not decompose in our landfills.  There are many other items which do not decompose in our landfills for various reasons.  Please reference this link for more info:  http://url.ie/f6jf.  Because these and many other items do not decompose in our landfills; we are causing a never-ending cycle of pollution, using up the finite number of resources Earth has, and affecting other Citizens of Earth, her animals.

I think we all can do our part to celebrate Earth Day everyday.

Renew-Reuse-Recycle

Renew, Reuse, and Recycle.  Peace be with you.

How do I envision living in a better gluten-free world?

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Good day to you.  My vision of living in a better gluten-free world is rather simple:  Having gluten-free food choices and being able to enjoy all of those choices in all settings.  That’s a simple enough statement isn’t it?  But where would or should those same gluten-free food choices and settings be?  That, my friend, is the more difficult question isn’t it?

Currently, food choices have greatly expanded in the main-stream Grocery store and the Health Food store for gluten-free food items.  Choices have also expanded with gluten-free menu items with National restaurant chains and with some Independent restaurants as well.  We celiacs, and gluten-free, are also making progress in regard to being able to purchase gluten-free food items more conveniently and at a cheaper cost than in the past.

However, I’m going to turn the silver-lining of the cloud of optimism upside-down.  There is a stigma of celiac, gluten-free which exists with family, friends, acquaintances, and co-workers. I only state ‘stigma’ as there is no knowledge easily accessible out there, without specifically researching “celiac, or gluten-free diet” in regard to celiac, gluten-free on the Internet.  Eating gluten-free in settings such as your family, friends, acquaintances, and co-workers without risk of cross-contamination is no small undertaking.  Education in regard to how your personal involvement with family, friends and acquaintances, and co-workers react to your gluten-free world is paramount in regard to your survival and health.  Most do not know the consequence of you even eating a crumb of gluten and how it will affect you.  It is your job to educate others.

A better gluten-free world?  People close to you will have to educate for themselves on what a gluten-free, celiac world means to you.  But others will not.  It’s up to you to figure out who is your advocate, and who is not.

Research, educate, and advocate all celiac and gluten-free.

Peace be with you.

Cooking From Scratch with Nutrition and Health

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Good day to you.  If you follow this blog and my Twitter feed, you know me to be very conscious of health and nutrition when preparing meals.  As a celiac, I feel it is most important to eat as healthy as I can due to the damage already done to my digestive system.  With more nutrition packed into each meal, the more nutrients are absorbed and the healthier I am.

When I’m in my kitchen, I like to cook from scratch with recipes whenever possible.  This is helpful to me on a lot of levels.  Foremost, I am in control of what foods go into my dishes.  I’m also in control of the quality of those foods in regard to freshness.  Additionally, I’m able to control the amount of preservatives, sodium, and artificial dyes and flavors in my dishes.  When I cook from scratch, it enables me to have control over each ingredient in my dishes.  I like having this much control as I feel more confident I will not be “glutened” in my own kitchen.  Also, I’m not dependent on any manufacturer of pre-packaged food items in regard to the accuracy of their nutritional and allergen information.

As you probably know in your own lives, I don’t think its possible to cook from scratch every day for every meal.  Life is just not like that.  That said, I’ve seen tips from others whereas they spend the majority of one day cooking for the week ahead and freezing food items in serving size portions.  I’ve seen other tips whereas people will cook items for more than one dish – like chicken for stir-fry with vegetables one night and tacos with lettuce, tomatoes, and cheese the next.  Or, make a salad with fresh greens and vegetables as a side dish for dinner, a lunch the next day, and dinner the next night – cooking from scratch is still being achieved.

As I’ve stated in previous blog posts, I do not live in your household.   You may already have ideas or practices in place to maximize cooking from scratch in the amount of time you have in your kitchen.  If so, good for you!  If not, please reference the Internet and Twitter for good ideas to maximize nutrition and health while cooking from scratch.  Live well and be healthy.

Research, educate, and advocate all celiac and gluten-free – and Irritable Bowel Syndrome (IBS) Awareness for April.

Peace be with you.

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Nice Bread recipe! I give u kudos on that! 🙂

Re-blogged with permission by Author: @EZ_GFree (https://twitter.com/#!/ezgfree).  Thank you.  🙂

EZ G-Free

Here’s a paleo and gluten-free bread recipe that I can honestly say kicks any gluten or gluten-free right to the curb!

This yeast-free bread is light for a gluten-free bread. It’s buttery nut flavour with the full organic aroma of olive oil soothe all the senses.

Ingredients

  • 5 Eggs
  • 1/4 cup olive oil
  • 3 Tbsp. Raw Honey or Pure Maple Syrup
  • 2 Tbsp. Apple Cider Vinegar
  • 1 1/2 cups Almond Meal
  • 3 Tbsp. Coconut Flour
  • 1/3 cup Flax Meal
  • 1/4 tsp. Sea Salt
  • 1 1/2 tsp. Baking Soda
  • 2 tsp. Cinnamon
  • 1 Tbsp. Seeds

Directions

Preheat the oven to 350 degrees. Grease a loaf pan.

Whisk the eggs. Add the olive oil, honey/maple syrup, and apple cider vinegar to the egg mix.

Next, mix the almond meal, coconut flour, flax meal, sea salt, baking soda, and cinnamon in another bowl.

Add the dry mix, 1/2 cup at a time, to…

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Celiac and Nutritional Diet – The Natural Way

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Good day to you.  If you follow me on Twitter (@GFDougie via https://twitter.com/#!/GFDougie), you know me to be very Nutrition-conscious and Health-minded in regard to what a celiac diet should be.

While noting the celiac diet is not a very easy diet to follow for all the ingredient reading, ingredient interpreting, and internet research; there are easier methods in following the diet which are more stress free.  What are those methods?  I’m glad you asked.  There are many ways you can enjoy, yes I said enjoy, a celiac diet and maintain nutrition relatively stress free.  Let’s start at the local Grocer, and the Produce department.  Many vegetables and fruits await you there – and they have no ingredient list to read!  There are different squash varieties you can sauté in olive oil together with onion, herb and spice; you can cook together tomato, okra, herb and spice in a saucepan; or you can make a soup of potato, onion, herb and spice, and cream.  You can also find “stir-fry vegetables” in a bag, add chicken or tofu, gluten-free soy or tamari sauce, and call it dinner!  What about making a fruit salad, grilling pineapples, or sautéing apples with sugar and cinnamon?  Can you say “peaches & cream?”

If you are into more wholesome, organic produce choices for your celiac diet, a cheaper alternative to the grocer is the farmer’s market.  Buying from locally grown vegetable/ fruit markets supports your local economy.  The benefit to you is “natural.”  Buy in-season vegetables and fruits at these markets at “rock-bottom” prices and save yourself some money.  Corn on the cob and lima beans can be transformed into fried corn or succotash.  You can use gluten-free bread and make breaded tomatoes.  Heck, you can even use an All Purpose Gluten-free Flour blend and make … fried green tomatoes!  How about fresh-snapped green beans and mashed potatoes?  What about stuffed bell peppers with rice, beef, and gluten-free seasonings!  The choices for menu options are endless.

Let’s go back to the Grocer, and Frozen Foods, and see how easy this can be for the celiac diet.  Again, the ingredient list is not hard to comprehend:  peas, corn, onions, green beans, cauliflower, broccoli, etc.  Not much to read there, right?  How many  meals can you make with so many combinations?  Almost endless, I think.  You can make stews, soups, casseroles and many more things I’m not thinking of at a fraction of the cost of fresh produce.  Side dishes made with these items are even more unlimited!

If you are not vegan, other stress free celiac-friendly departments at the Grocer are the Meat and Seafood departments.  Obviously chicken, turkey, pork, and seafood are more healthful than beef.  But, with moderation, all can be included in a celiac diet at no risk of ingesting gluten.

The bottom line – instant, boxed, or microwaved entrées and other food items are not as nutritional.  Cook from scratch and know what you are eating.  The burden is upon you on how nutritious you are.

Research, educate, and advocate all celiac and gluten-free – and Irritable Bowel Syndrome (IBS) Awareness in April.

Peace be with you.